Newly Diagnosed

My son was just diagnosed with Eosinophilic Esophagitis, along with multiple and severe food allergies. Among his many allergies are: milk, soy, rice, oat, egg, and peanut. This poor baby has been fussy his whole life, and doctors have been telling me he's just a fussy baby. It makes me so angry that I was blown off, and it has taken so long to uncover what I knew deep down all along. Our pediatric GI gave us a special formula to try and give him, but he refuses to drink it. We had him on soy milk, because at age 1 when we tried to put cow's milk into his bottle, his face and neck broke out in hives, so we knew he was allergic to dairy. But, it turns out that since he's also allergic to soy - the soy milk that we were giving him was causing all these internal problems, which is the eosinophilic esophagitis. We should have had him on this special amino-acid-based formula all along, but no one truly believed (except me) that he really had a problem. An issue also for him is he is highly allergic to orange and grapefruit - again, the peds gi gave us a scrip for some vitamin drops, but when I got the prescription filled and looked at the ingredients at home, they contain "oil of orange" - they are checking to see exactly what that is, and if we can give those to him or not.
So, it has been interesting, and sad - almost every day we find something that we have been giving this poor baby for the past year or longer (say, Cheerios in church) and he is allergic to them!! I have found a wonderful local support group for parents of children with food allergies, and they are going to be a tremendous resource.

1st Blog

We had major thunderstorms in metro Detroit - as a result, the Tiger game didn't start until like, 11:00 p.m. Now as I sit and play on the new laptop - I affectionately listen to DH snore while laying in the couch, pretending to listen to the game! Aw!
Kiddies are tucked safe in their beds...was a bit strange tonight, we were just about to walk out the door to go out to dinner and the storms hit. We (wisely) decided to stay in...while feeding the kids there were terrible reports on the news and the sirens started to go off. We took them down to the basement to "play" - really wanted everyone down there for safety, just in case. We are very lucky to live in a neighborhood with good sewer system, no real threat of floods, etc. Heard of several tornadoes that may have touched down close by, but not that close to us (thank goodness!)
Well, time to rouse DH off the couch and into bed!